Knots within my gut, can’t get far enough
I decided that I need a place where I can write about my illness without directly bugging the people I know and love. They hear enough out of me, you know?
The illness in question is Crohn’s Disease, and besides giving you a glimpse of what it’s like to live with it and the challenges that it offers, I want to talk about invisible disabilities and how they are given space or excluded in daily life. My hope is that you’ll find support, or education, or just a little more insight through my unflinching honesty and [probably] inappropriate humor.
I’m Xiane, she/they, a fifty-something citizen of the USA. I live in Baltimore, MD, and I’m a writer and artist. I’ve been struggling with my GI system since I was 20, maybe earlier, but I was dismissed several times after it became chronic, but before things turned dire. I was hospitalized for 11 days after an emergency small bowel resection, a story I’ll relate in detail in the future. That event is what finally got me a diagnosis of Crohn’s Disease. Weirdly, it was a relief.
The title of this blog and post are taken from a song by the band Twelfth Of Never. I appreciate the play on words and how it relates to my situation. I’m a music obsessed DJ, and I often use lyrics as titles for my personal blog posts. So I’ll continue this here, because that’s how I roll.
I’ll take time to write out my story in just a bit.
Photo by Milada Vigerova on Unsplash
